Sunday, July 18, 2010

Sunday, July 18th the boys had a good day. Austin, nippled both of his feedings at 2:30pm and 5:30pm. We hope he is headed out the door soon. He is tolerating the one liter on the canula as well. Calvin is doing well at home. Greg left for Indy today for work for 5 days. I was sad to see him leave, I am going to be busy! Thank goodness for family.

Saturday, July 17, 2010

Saturday, July 17th was a good day for the boys. Austin has been doing well on his breathing, they lowered him to 1 liter of flow on the canula. He is starting to make real improvements in his nippling. He has nippled just over 50% of his feedings in the last 24 hours which is a huge improvement. Hopefully it is a start in the right direction. The best news of the day with him was he got moved down to 1218 (the last room before you go home)!! YEAH! Calvin is doing well. We drove out in the country this evening to watch the Stanford fireworks. Of course he slept in his car bed the whole time!!

Friday, July 16, 2010

Friday, July 16th was an okay day for boys. Calvin had an appointment at Dr.cross's office, he said he looked great. He weighs 5 lbs 3 oz. We don't go back for 10 weeks. Not sure what this crazy mom will do not having him weighed all the time. Well another typical day today for Mr. Austin. For his 11:30am feeding and the 2:30pm feeding with the feeding therapist he acted as if he had never nippled before. I was so frustrated when I left this afternoon. I came home and after much persuasion from my mom and sister went to the Toby Keith concert with my parents and Brian, Melissa and Greg. While on the way to the concert we called to see how Austin did at the 5:30pm feeding. The nurse said he nippled the entire feeding. Of course that made me happy, but I was careful not to get too excited because it was just one feeding. Sure enough, when we called back on our way home from the concert he had gone back to his old tricks and took basically nothing at his 8:30 feeding. He only took 4 out of the 25ml's. I don't think that child will ever eat. One of the nurses asked him last night if she was going to have to go to prom with him to clean out his feeding tube for his dinner. (some days I wonder)!! I was glad to get out this evening, it was much needed. Shelly, one of my best friends, watched Calvin. She said he did great. I am so thankful to have such great help and support!

Thursday, July 15, 2010

Thursday, July 15th the boys had an okay day. Austin is still not nippling well. They have changed his fomula to a thicker formula in hopes that might help. On a good note he is doing better on his breathing. He is only in 22% on the canula. Nana and Aunt Judy came to hospital this evening for the CPR class. Calvin is doing well at home. We have increased his feeds again!!!

Wednesday, July 14, 2010

Wednesday, June 14th the boys had a good day. Austin had the upper GI test today. The radiologists said that everything looked compeletly normal. It wasn't even showing reflux. Now they just have to figure out what kind of formula will allow him to nipple. There will be a feeding therapist examing him tomorrow to hopefully advise on some technique and help. He is still looking good as far as the swelling goes. His lower extremeintes are still somewhat swollen but his face looks much better. Calvin is doing well at home. Nana and Papa Fonger came to vistit tonight. They had been on vacation for the last 10 days in Price Edward Island. They were glad to see Calvin. Grammy and her golfing buddy Vicki stopped to peek at Cavlin this morning as well, while on their way to golf. (yes they are nuts for golfing in the heat.)

Tuesday, July 13, 2010

Tuesday, July 13 the boys had a pretty day. Calvin is doing well. The home health nurse came today and said he looked great. She also weighed him and he weighs 5 lb 2oz. Yeah! Austin, is still doing okay with his thickened feeds. He did spit a little up this morning, so the doctor has decided they will go ahead with the upper GI study. They think it is just reflux but since he is still spitting up some they want to rule anything else out. I am glad they are going to do it, even though it makes me nervous wondering if everything is okay. He only had one brady today so that is a good thing. I added some pictures earlier today to yesterdays post!

Monday, July 12, 2010




















































































































Monday, July 12th the boys had a good day. Thanks to Grammy for watching Calvin all afternoon and evening. I was able to make my first trip to Walmart in 3 months this afternoon. Then Greg and I spent the evening together at the hospital and out to dinner. Calvin loved staying with Grammy and Papa. I think he is getting a little too spoiled. The best news of the day was Austin is doing much better with the feeding. The doctor decided today not to do the upper GI and just start treating him for reflux since clinically he was showing all of the symptoms. They changed his formula to a thicker formula by adding rice. He took his whole bottle at 2:30pm and has done well on the feedings this evening. He had no bradys with his feedings today like he had been having in the last few days. They are definitely correlating those bradys to reflux, and so they aren't that concerned that he had them, but we sure hope he is done having them. He is also looking much less puffy. The diarrel seems to really be working. We just hope and pray this is the turn for him and he will be heading home soon!